The Queensland Familial Cancer Registry (QFCR) is a Queensland state-wide service, it is part of Genetic Health Queensland. The QFCR was established to improve the care of those with or at risk of a familial bowel cancer syndrome.
Approximately 5-10% of all bowel cancers are familial (inherited). Familial bowel cancer may affect adults at a younger than usual age of onset and the risk of cancer can be inherited by their children. If a person is aware that they are at risk, there are measures that can be taken to reduce the chance of developing cancer or at least detect it at an early and potentially curable stage. The Registry can assist you with this.
Who should join QFCR
People who would most benefit from the services of the Registry are:
Individuals who have been through a family cancer clinic or genetic service and been advised they are in a family with an inheritable increased risk of developing cancer.
- Specifically individuals who have been advised they are a carrier of gene error (mutation) for one of the following known familial (hereditary) syndromes.
- Lynch Syndrome, also known as Hereditary non-Polyposis colorectal cancer (HNPCC).
- Familial Adenomatous Polyposis (FAP) or Attenuated FAP
- Juvenile Polyposis
- Individuals and their first degree relatives who have been advised their family history of cancers and molecular investigations completed by a genetics service suggests they are in a high risk family and should screen as per one of the nominated syndrome guidelines.
- Individuals considered to have a high risk polyp prone history and are considered at high risk of developing colon cancer.
Consent to QFCR
To become part of the Registry we will ask you to complete a consent and enrolment form. The completion of these forms enables us to put your details on the register, obtain relevant medical records in particular pathology reports to assist us in providing you with relevant information pertaining to your ongoing procedures and tests for early detection as part of your surveillance.