Resources for families
Genetic Health Queensland
- Genetic Health Queensland: Telehealth Frequently Asked Questions
- Royal Brisbane & Women’s Hospital: Telehealth Quick Reference Guide
- QLD Health Patient Travel Subsidy Scheme (PTSS)
- How to access genetic healthcare in Queensland (QLD Genomics video)
Clinical Genetics
- Human Genetics Society of Australasia (education & consumer resources)
- Australian Genomics: Genomic Information for you and your family
- Genetic and Rare Diseases Information Centre
- GeneReviews (guidelines & information about many genetic conditions)
- GenomeConnect (patient registry for individuals to connect and share data/information)
Cancer Genetics
- eviQ (factsheets & guidelines for people with an inherited cancer predisposition)
- Wesley Hospital Choices Cancer Support Centre
Prenatal Genetics
Genetic Testing
- Your Blood, Your Story (QIMR Aboriginal & Torres Strait Islander Health)
- QLD Genomics Patient toolkit (includes some additional language information)
- Melbourne Genomics: Learn Genomics
- Genetic testing and life insurance (NSW Centre for Genetics Education)
- Australian Genomics Genomic Testing Fact Sheet
- NSW Health Genomic Testing Fact Sheet
- NSW Health Genomic Testing Video
- ANU National Centre for Indigenous Genomics info and video
Education & Support
- NSW Centre for Genetics Education
- Genetics Service Finder (public & private)
- Unique (rare chromosome & gene disorders)
- ARCAN (rare chromosome disorders, now on Facebook)
- Guard Collaborative (national support)
- Rare Voices Australia (national support)
- Genetic Alliance Australia (national support)
- Syndromes Without a Name (national support)
Specific Conditions
- Australian Mitochondrial Disease Foundation
- Australian Pompe Association
- Cystic Fibrosis Australia
- Fabry Australia
- Fragile X Association of Australia
- Huntington’s Disease: Brain Foundation
- Huntington’s Disease: Enroll HD
- Leukodystrophy Australia
- Muscular Dystrophy Australia
- Paediatric Epilepsy Network NSW
- Spinal Muscular Atrophy Australia
- Thalassaemia and Sickle Cell Australia (TASCA)
Block 7
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Contact us
Genetic Health Queensland Outpatients Location: Level 6, Block 7 Royal Brisbane & Women's Hospital Campus HERSTON QLD 4029 Phone: (07) 3646 1686 Email: GHQ@health.qld.gov.au
In an emergency call 000.
Refer a patient
To refer your patient, view the
Genetics General Referral Guidelines
Genetics Cancer Referral Guidelines
GP and Specialist Referral Hotline: 1300 364 938
Need help outside hours?
For non-urgent medical issues call 13 HEALTH (13 43 25 84) or visit your GP.